I had a perfectly reasonable evening after spending yesterday afternoon working on speech for my little sis. I had my ...100% vodka alcohol wash...gargled....watched a movie....read....slept quite well.
7.30am is the first infusion for the day. The day is broken up by the nurse's visits, 'food' deliveries; Dr F visit, Anastasia popping her head in, etc. All the girls say "Good morning" but it doesn't go much further than that, other than Dr F, Anastasia, Eirena and Olga....so I hang for their shifts!
Official stats for today are that everything is still dropping (which is what should be happening). For those playing at home: Haemoglobin 88; Leukocytes 0.33; Platelets 96. All jibber-jabber to me but I can see what I need to get back to before I'm released so hopefully with good behaviour, all the numbers will turn within a week.....but who knows!
I get a feeling that my temp might be a little high for them as they've checked this quite a few times today and Dr F just called in to say they will check it again at 6pm; 8pm and 10pm. I've had a sneaky go myself and it's sitting around 36.8 which I thought was okay....but maybe not! I feel fine - if not a little weak and lazy...
My day has been filled reading, meditating, colouring, facebooking, talking to mum and dad, dozing and eating. OMG I am not designed for this. I have started stalking my work email to see if there is anything I can do, but with school holiday's starting next week - even that's going to go cold!
I have downloaded an exercise app (just 7 mins of planks, walls sits, push ups, lunges and stuff like that) so that will hit the agenda too. Any good games I should download?? I've tried playing the Trivial Pursuit app; Sudoko and brain trainer games on the iPad but ....seriously boring as bat stuff.
Well - talk about a ray of sunshine!! Just as I was typing this I got a call from my BFF Jodie and my sister-from-another-mister Simone! Calling all the way from Bali!! HOW AWESOME IS TECHNOLOGY!!! I got to giggle at their bartering prowess and pedicure story while they in turn complimented by bad-ass head....(which incidentally I still hate and can't look at - no comments required)...
So great chatting....SO great. Love these girls. What strong, crazy women we are! Hear us Roar!
Just before I sign off I guess I should document "how am I feeling"....I feel...Fine. Good. Positive.
I still can't quite get my head around the fact that I NO LONGER HAVE MS but I feel supported, happy, calm...yeah - good.
Without question I'm a little bored...a little tired....but I don't think they're classed as feelings.
I think that's it for now....I'm quite involved in my book so might read that until dinner than throw on some movie or something.
I have an app on my phone that says HOME is 13 days away....How freaking awesome is that!!! C'mon Stemmies / Bloods - do your thing!!
Day 1.5 done and dusted....Boo-Yeah.
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